top of page

DSDN Topical Groups

DSDN offers a wide variety of groups so that you can connect with other parents around specific medical conditions, parent or family identities, or other shared experiences. When you join the free DSDN Rockin' Parent Community App you have access to all of these groups!

GetItOnGooglePlay_Badge_Web_color_English.png

​Medical Condition Groups​

These groups connect parents around topics relating to different medical conditions:

  • Airway Disorders

  • Alopecia Diagnosis

  • Atlantoaxial Instability (AAI)

  • Breastfeeding/Pumping Support 

  • Cancer Diagnosis (dads group)

  • Cancer Diagnosis (moms group)

  • Clubfoot

  • CPAP/O2

  • Cranio Issues

  • Dual Diagnosis - Autism & DS

  • Feeding Support

  • GI Concerns

  • Hearing Loss

  • Heart Heroes (Heart Conditions)

  • Hydrops and Pregnancy 

  • Infantile Spasms, Epilepsy, Seizures Diagnosis

  • Medically Complex Children

  • Moyamoya Disease

  • NICU Support

  • Pulmonary Hypertension

  • Sleep Challenges

  • Thyroid Conditions

  • TAM / TMD Diagnosis

  • Tube Feeding

  • Trach

  • Vision Concerns​​​

​School & Academic-Related Groups​​

These groups connect parents around topic related to school and academics.

  • Homeschooling Support

  • IEP/IFSP Support

  • Not Yet Academic Skills

​

Not Yet Groups

These groups connect parents around specific developmental areas where the child has not yet mastered that area of development. 

  • Not Yet Academic Skills

  • Not Yet Potty Trained

  • Not Yet Speaking

  • Not Yet Walking

Parent & Family Identity Groups

These groups connect parents based on cultural identity, social identity, shared characteristics or life experiences. 

  • Adoption (for those who have already completed adoption, or already have a child with Ds and are home-study approved to adopt another)

  • Africa

  • Asian Families 

  • Black Families

  • Canada

  • Content Creators

  • Crunchy/Natural Parenting

  • Dads Group

  • Fit-Minded Moms

  • Homeschooling Support

  • Large Families

  • Military Families

  • More Than One Child with a Diagnosis 

  • More Than One Child with Ds

  • Mosaic Down Syndrome

  • Over 40 at Diagnosis Moms

  • Parenting an Only Child

  • Parenting as an LGBTQIA Parent

  • Parents with a Twin (or Two) with Ds

  • Pregnancy After a Child with Down Syndrome

  • SE Asia

  • Single Parenting - Moms

  • Single Parenting - Dads

  • Spanish Speaking Moms

  • Stay-At-Home Dads

  • Stay-At-Home Moms

  • Translocation Down Syndrome

  • Under 40 Moms

  • Working Moms

​For Families That Experience a Loss

​

Other Groups

  • All Star Rockin' Mom Group

GetItOnGooglePlay_Badge_Web_color_English.png
bottom of page